Prune Belly Syndrome Network

2013 Prune Belly Syndrome Network Convention St Louis

  • 07 Aug 2013
  • 12:00 PM
  • 11 Aug 2013
  • 12:00 PM
  • Sheraton St Louis City Center


(depends on selected options)

Base fee:
  • The admission fee has the option to be paid or optionally raised thru a fundraiser.
  • Includes Invitation to the Welcome Event on Wednesday Evening. Entry to all of the lectures on Thursday & Friday to include beverage service and Lunch Daily

Registration is closed

The convention dates are firm: August 7 to 11th at the Sheraton St Louis City Center Hotel & Suites. Go ahead and start planning your travel arrangements if you haven't already!! Why not add some extra days to take in Silver Dollar City in Branson, Mo with your family? Rate applies to 3 days pre & post convention.

Sheraton St Louis City Center Hotel & Suites

You can make your hotel reservations two ways:

Online at:

OR Telephone:

314-231-5007 or 888-627-8096

Please note: when making reservations on the phone be sure to mention the group rate of “2013 Prune Belly Syndrome Network Convention”

You need to register on our site and make your hotel reservation, even if you are a scholarship family.

August 7th to 11th 2013

  • ·         Room Rate $129.00 - $139 with room choice 
  • ·         Rate is available for 3 days pre & post convention
  • ·         Free Breakfast Thurs, Fri & Sat
  •      Welcome Party Wednesday Evening 
  •       Lunch served Thurday & Friday at Conference 
  •       Sunday we will host a goodbye Breakfast.
  • ·         Rooftop Pool
  • ·         Walking distance to all the local attractions
  •       Group Events for all attendees
  •      Childcare/Playroom during Lectures
  •      Teen Room & Outings

 Topics This Year Include:

  • Genetic Causes & Testing
  • Medical Resumes - Every person should have one
  • Urologists
  • Immunologists
  • Gastrointerology
  • Catheters
  • Holistic Habits
  • Navigating services available to you
  • Pharmacueticals
  • Make-a-Wish
  • & so much more!

Rental car tip: Use and rent the car for a week even if you won’t need it for that long. Car Services are also available at the airport as well as raised rail.

This year we are planning more exciting events. Welcome Party on Wednesday Evening with a DJ & Balloonists. Dad & Me pitch & putt golf outing. How about a group event at Great Adventure with a private BBQ and were hopong to take in a Cardinals/Dodgers Game. Lots of great stuff in the works.  

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