Prune Belly Syndrome Network

Events



Upcoming events

    • 04 Apr 2019
    • 6:00 PM
    • 07 Apr 2019
    • 12:00 PM
    • Dallas, Texas
    Register


    PBSN is pleased to present   

     "One in a Million Women's Weekend"  

    April 4th - April 7th                                

    Dallas, Texas 

    We have secured a room block at a rate of $119 per night at the Hilton Garden Inn DFW Airport South with complimentary breakfast. They offer free shuttle service from DFW Airport as well as well as free self parking

    April 4th - April 7th, 2019

    • BOD arriving Thursday Evening with Research Room opening at 8am Friday  
    • Registration  will open on Thursday Evening
    • Complimentary cooked to Order Breakfast starts at 7am
    • Friday 9am Meet Team Baker, Q&A 
    • Friday 7pm Wine & Cheese in the Hospitality Room
    • Research Room will be open all day Friday & Saturday 
    • Friday & Saturday Lunch will be served 
    • Saturday at Noon Group Photo, Convention Tees Please
    • Saturday 4:00pm Bare Your Belly Swim at the outdoor pool weather permitting
    • Saturday 6:00pm Ladies Tea in the Hospitality Room please bring your "Best Hat" 
    • Sunday Morning "See you soon" Breakfast 8am  

    Please register on our site AND book a room with Hilton via Link or Phone 

    Registration is $50 per person which includes Event Tshirt, Complimentary Breakfast Daily, our Wine & Cheese Event and our Ladies Tea plus lunch will be served Friday & Saturday. 

    Speakers & Sessions

    • Fertility
    • Gynecology 
    • Mammography
    • Obstetrics
    • Research
    • Urology
    • Dads Group
    • Married to PBS
    • Physical Therapy

    Research

    Dr Bakers Team will be present to take new and updated research samples in reference to the genetic testing but they will also be expanding the research for females, so please stop by and see them, even if you have already participated. Genetic Samples are generally taken from the Survivor, Parents, Siblings & Grandparents so we do encourage as many family members to attend as possible, We often find that multiple generations can be very helpful with the families medical history. You can also contact Misty Blanchard, RNBSN our Research Liason at MBlanchard@prunebelly,org with questions or to preregister to participate with the Research Team. 

    We are truly looking forward to meeting entire families. The conference portion with the Female Specialties will be closed door for females only with no recording permitted as to offer our ladies the opportunity to speak freely. We have a wonderful secondary space for gatherings and breakouts that will accommodate the entire family keeping everyone engaged during the full conference.

    Hilton Garden Inn  $119

    • Cooked to order Breakfast Daily Included
    • Outdoor Pool
    • Fitness Center
    • Free Airport Shuttle
    • Free Self Parking

    The Hilton Garden Inn, DFW South
    2001 Valley View Lane
    Dallas, Tx 75061
    2972-313-2800 call to arrange for shuttle

    Booking 855-610-8733

    Booking Code is: PBSN 

    or Link

     Booking Link: https://secure3.hilton.com/en_US/gi/reservation/book.htm?inputModule=HOTEL&ctyhocn=DFWIRGI&spec_plan=PBSN&arrival=20190404&departure=20190407&cid=OM,WW,HILTONLINK,EN,DirectLink&fromId=HILTONLINKDIRECT


    Cant wait to see all of our beautiful ladies!!!


     

     



    • 24 Jul 2019
    • 2:00 PM
    • 28 Jul 2019
    • 12:00 PM
    • Embassy Suites

    CONVENTION 2019  

    July 24th to 28th Phoenix, Arizona

    We are being hosted by the Embassy Suites Phoenix Airport. Consider adding a few extra days to take in all the sites with your family, such as Desert Botanical Gardens Phoenix Zoo or the Arizona Science Center but most of all discover "you're not the only one"     

    Rates apply to 3 days pre & post convention.

    Embassy Suites Phoenix Airport

    2333 E. Thomas Road, Phoenix, Arizona 85016 

    make your hotel reservations one of two ways:

    Online at:  

    http://hamptoninn.hilton.com/en/hp/groups/personalized/D/DALHTHX-PSB-20170723/index.jhtml?WT.mc_id=POG

       

    OR

    By Phone: 602-824-1452 Reservation Code: PBS

    You need to register all guests on our site AND make your hotel reservation please.

    July 24th- 28th

    • Suite Rates $115 per night
    • Rate available 3 days pre & post convention
    • Free Airport Shuttle to and from  Phoenix Sky Harbor International Airport
    • Complimentary Breakfast Daily
    • Managers Reception Each Evening
    • Area restaurants within walking distance as well as Onsite Restaurant and Free Shuttle within 3 miles
    • Outdoor Swimming Pool
    • Registration begins Wednesday at 2pm
    • Meet & Greet Welcome Party Wednesday at 4pm
    • Luncheons Thursday & Friday
    • Family Picnic Saturday
    • Mentor Families to Aid
    • Infant Childcare & Separate Playroom
    • Teen Room W/Activities

     Topics This Year Include

    • Genetic Causes & Testing - Dr Linda Baker
    • Communication With Your Medical Team 
    • Urologists
    • Muscle Transposition & Plastics
    • Nephrology
    • Gastrointerology
    • Catheters
    • Family Challenges
    • Communicating with Educators
    • Insurance, What do you Qualify for 
    • Share your Secrets
    • Just for Dad's
    • Just for the Teen Survivors.. A chance to share
    • Q & A with the Survivors
    • Sibling Survival Chat
    • Also please remember what doesnt apply to you today just might tomorrow... Please do your best to attend all speakers

    This year we are planning more exciting events, lots of great stuff in the works. We will of course host our Meet & Greet Welcome Party on Wednesday evening with a light dinner, DJ & dancing and getting reacquainted with old friends and making new ones. This years theme is still to be determined. So stay tuned.

    Breakfast is served daily compliments of the Embassy Suites Monday-Friday from 630-930 Saturday and Sunday 700-1000. So rise and shine early as we will begin the conference each morning at 8am Daily evening reception with light snacks soda beer wine and house specials served each evening from 530-730.

    Lunch will be provided on Thursday and Friday.

    Sunday we will enjoy a brief prayer service & farewells.

    Additional events will be announced as they are made available.

    Lots of great speakers & new topics.

    Rental car tip: Use Travelocity.com and rent the car for a week even if you won’t need it for that long, its often cheaper. Priceline is a good one to try as well especially last minute.

     


    • 24 Jul 2019
    • 2:00 PM
    • 28 Jul 2019
    • 12:00 PM
    • Embassy Suites
    Register

    CONVENTION 2019  

    July 24th to 28th Phoenix, Arizona

    We are being hosted by the Embassy Suites Phoenix Airport. Consider adding a few extra days to take in all the sites with your family, such as Desert Botanical Gardens Phoenix Zoo or the Arizona Science Center but most of all discover "you're not the only one"     

    Rates apply to 3 days pre & post convention.

    Embassy Suites Phoenix Airport

    2333 E. Thomas Road, Phoenix, Arizona 85016 

    make your hotel reservations one of two ways:

    Online at:  

    http://hamptoninn.hilton.com/en/hp/groups/personalized/D/DALHTHX-PSB-20170723/index.jhtml?WT.mc_id=POG

       

    OR

    By Phone: 602-824-1452 Reservation Code: PBS

    You need to register all guests on our site AND make your hotel reservation please.

    July 24th- 28th

    • Suite Rates $115 per night
    • Rate available 3 days pre & post convention
    • Free Airport Shuttle to and from  Phoenix Sky Harbor International Airport
    • Complimentary Breakfast Daily
    • Managers Reception Each Evening
    • Area restaurants within walking distance as well as Onsite Restaurant and Free Shuttle within 3 miles
    • Outdoor Swimming Pool
    • Registration begins Wednesday at 2pm
    • Meet & Greet Welcome Party Wednesday at 4pm
    • Luncheons Thursday & Friday
    • Family Event Saturday
    • Mentor Families to Aid
    • Infant Childcare & Separate Playroom
    • Teen Room W/Activities

     Topics This Year Include

    • Genetic Causes & Testing - Dr Linda Baker
    • Communication With Your Medical Team 
    • Urologists
    • Nephrology
    • Gastrointerology
    • Catheters
    • Family Challenges
    • Communicating with Educators
    • Insurance, What do you Qualify for 
    • Share your Secrets
    • Just for Dad's
    • Just for the Teen Survivors.. A chance to share
    • Q & A with the Survivors
    • Sibling Survival Chat
    • Also please remember what doesnt apply to you today just might tomorrow... Please do your best to attend all speakers

    This year we are planning more exciting events, lots of great stuff in the works. We will of course host our Meet & Greet Welcome Party on Wednesday evening with a light dinner, DJ & dancing and getting reacquainted with old friends and making new ones. This years theme is still to be determined. So stay tuned

    Breakfast is served daily compliments of the Embassy Suites Monday-Friday from 630-930 Saturday and Sunday 700-1000. So rise and shine early as we will begin the conference each morning at 8am. Daily evening reception with light snacks soda beer wine and house specials served each evening from 530-730. Please note Breakfast and Managers Reception is complimentary  to overnight hotel guests.

    Lunch will be provided on Thursday and Friday.

    Sunday we will enjoy a brief prayer service & farewells.

    Additional events will be announced as they are made available.

    Lots of great speakers & new topics.

    Rental car tip: Use Travelocity.com and rent the car for a week even if you won’t need it for that long, its often cheaper. Priceline is a good one to try as well especially last minute.

     


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