Prune Belly Syndrome Network

2015 Prune Belly Syndrome Network Convention New Jersey Metropolitan Area

  • 29 Jul 2015
  • 2:00 PM
  • 02 Aug 2015
  • 12:00 PM
  • Embassy Suites Elizabeth Newark Airport, New Jersey


  • The admission fee has the option to be paid or optionally raised thru a fundraiser. Registration has been increased and is necessary to assist in covering the growing costs of convention. In comparison to most charities we are charging on average 80% less. If you would like additional information on Civic Groups in your area that might be able to assist please contact
  • An Invitation to our Welcome Event on Wednesday Evening to meet Survivors form around the world. Entry to all of the lectures on Thursday & Friday to include Lunch & Beverage service Daily.
  • We welcome Medical Students at a reduced cost. We hope you will join us. We invite you to attend our Welcome party where you can meet survivors from around the world. Lunch will be served Daily

Registration is closed

PBSN Convention 2015   July 29th - August 2nd    New Jersey Metropolitan Area

We are being hosted by the Embassy Suites Airport Hotel in Elizabeth NJ. You have 2 hotels to choose from. All of our meetings will be held at the Embassy Suites with your second option, the Country Inn & Suites, directly across the street (Walking Distance) The Embassy Suites Elizabeth Newark Airport opened in January 2014. It is a contemporary modern design with all suites, cooked to order breakfast & managers reception is included daily. The Country Inn & Suites offers standard rooms with a continental breakfast. Go ahead and start planning your travel arrangements if you haven't already!! Why not add some extra days to take in all the sites with your family? 

July 29th - August 2nd

  • Welcome Party Wednesday Evening
  • Luncheons Thursday & Friday
  • 2 Hotels to choose from
  • Jersey Gardens Mall  - 3 min walk
  • Mentor Families to Aid
  • Infant Childcare & Separate Playroom
  • Teen Activities Game Truck & Theater Outing
  • Area Airports  Newark, JFK & LaGuardia   

Topics This Year Include

  • Genetic Causes & Testing
  • Medical Resumes - Every person should have one
  • Urologists
  • Gastrointerology
  • Catheters
  • OT & PT
  • Family Challenges
  • Communicating with Educators
  • Insurance What do you Qualify for 
  • Pharmaceuticals
  • Just for Dad's
  • Just for the Teen Survivors.. A chance to share
  • Q & A with the Survivors
  • Sibling Survival Chat
  • Also remember what doesn't apply to you today just might tomorrow... Consider attending all the speakers
  • Vender Fair
  • Fundraising

You need to register on our site as well as make your hotel reservation.

Embassy Suites $149

  • 2 Room Family Suite W/ King  & Pullout or 2 Doubles & Pullout
  • Cooked to order Breakfast Daily Included
  • Evening Managers Reception Daily Included
  • Indoor Pool
  • Fitness Center
  • Free Airport Shuttle
  • Free Wifi
  • Free Parking
  • Rate is available 3 days pre & post convention

Embassy Suites Newark Airport
95 Glimcher Realty Way
Elizabeth, NJ 07201

You can make your hotel reservations two ways:

Online at:

Or Call 1-800-HILTONS1-800-HILTONS

Reservation Code PBS 

Country Inn & Suites $119

  • Standard Room with 1 King or 2 Doubles
  • Continental Breakfast Daily included
  • Indoor Pool
  • Fitness Center
  • Free Airport Shuttle
  • Free Wifi
  • Parking $10

Country Inn & Suites by Carlson
100 Glimcher Realty Way
Elizabeth, NJ 07201

We are awaiting the registration codes for the Country Inn & Suites. We will post them as soon as they are available.

Feel free to register for convention prior to making you hotel reservations. Cant wait to see everyone!!!

This year we are planning more exciting events. We will again host a Welcome Party on Wednesday Evening with a DJ, Sambulance Mascot, Balloonists and a tour NJ foods like Fresh Jersey Corn, Water Dogs, Pizza, Fresh Mozzarella with Beefsteak Tomatoes, Italian Ice and fresh baked Pastries & Cookies. 

Lots of great stuff in the works for our childcare rooms to include an Art class, Mad Science Party, Fun Bus, Cookie Decorating, The Game Truck, and a Teen Outing. We will continue to add updates as more events are booked. We will also have a concierge available to help you plan your outings along with discounts.

Rental car tip: Use and rent the car for a week even if you won’t need it for that long, its often cheaper. Priceline is a good one to try as well especially last minute. There is pulic transportation available from the Jersey Gardens Mall that includes a Bus Service. The Train station is accessible from the airport and can take you into NYC or down to the Jersey Shore.

Please register by June 30, 2015. Registration fees will increase after June 30, 2015 to $50 per person. Registration cancellations made after June 30th will be taken under review.

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