Prune Belly Syndrome Network

2025 Prune Belly Syndrome Network Convention - Columbus OH

  • 09 Jul 2025
  • 8:00 AM
  • 13 Jul 2025
  • 12:00 PM
  • Embassy Suites by Hilton Columbus Airport

Registration

  • All medical professionals wishing to attend as a guest. (non speakers & those not part of team Baker
  • Beginning on 6/1/25 a $10 late registration fee will be assessed.

Register
  •                                  CONVENTION 2025

                             July 9th - 13th Columbus, Ohio



                                Home of Team Baker

                         Nationwide Children’s Hospital 


We are being hosted by the Embassy Suites Columbus Airport. Consider adding a few extra days to take in all the sites with your family, such as Columbus Zoo, Zoombezi Bay, Franklin Park Conservatory & Botanical Gardens or The Center of Science & Industry but most of all discover "you're not the only one" Team Baker is now part of Nationwide Children's Hospital and excited to bring new members onto the team, that include an entire Medical Team Concept at Nationwide.

Hotel Rates apply to 3 days pre & post convention. Our hotel block will  close on 06/01/2025 after that room rates will be at current rack rate. So plan to book your room prior to then. Additionally a $10 late registration fee will apply to all wishing to register for convention beginning on 06/01/2025 Get registered early.

Embassy Suites Columbus Airport

2886 Airport Rd Columbus, Ohio 43219

614-536-0500

make your hotel reservations one of two ways: Online via link below:

https://www.hilton.com/en/book/reservation/deeplink/?ctyhocn=CMHATES&groupCode=CES927&arrivaldate=2025-07-06&departuredate=2025-07-16&cid=OM,WW,HILTONLINK,EN,DirectLink&fromId=HILTONLINKDIRECT


The dates will automatically default to 6-16 July 2025 as 3 days pre and post convention are included in the special rate for PBS. You will need to edit your dates to see the available queen rooms. If you need assistance booking your reservation please contact Robin Fehring 732-921-2275 or Loretta Davis 330-774-9326 or for a more prompt response contact the hotel front desk directly by phone listen to prompts in their entirety and remain on the line for operator.

OR

By Phone: 614-536-0500 Reservation Code: PBS

You need to register all guests on our site AND make your hotel reservation please.

July 9th - 13th

· Suite Rates King $135 (sleeps 4) or 2 Queens $145 (sleeps 6)

· Includes free parking & local shuttle

· These rates are available 3 days pre & post convention are also available

· Free Airport Shuttle to and from John Glenn Columbus International Airport

· Complimentary Breakfast Daily for up to 3 guest additional Adults $16.95 & Kids $7

· Area restaurants within walking distance as well as Onsite Restaurant

· Indoor Swimming Pool

· Registration begins Wednesday at 8am hosted by Loretta Davis - Vice President

· Meet & Greet “Welcome to the Team Party“  Wednesday at 4pm

· Luncheons Thursday, Friday & Saturday

· Mentor Families to Aid

· Infant Childcare & Separate Kids Playroom

· Activities including Game Truck for all ages & Scene 75 for 13 and over

Topics This Year Include

· Genetic Causes & Testing - Meet Team Baker

· Urologists

· Nephrology

· Gastroenterology

· Pectus Surgery - Adam Alder

· Psychiatric Effects

· Catheters - Including Site Vendors

· Family Challenges

· Building your Village

· Communicating with Educators

· Dialysis & Transplant Journeys

· Medical Resumes

· Educating your teen & adult survivor with their history

· Tips & Tools Workshop

· Just for Dad's Workshop - Bill Davis & Josh Vela

· Just for the Teen Survivors Workshop

· Sibling Survivors Workshop "Because you are also not the only one"

· Q & A with the Survivors & Family Panel

· Physicians Panel - Connecting the Dots

· Also please remember what doesn't apply to you today just might tomorrow... Please do your best to attend all speakers

This year we are planning more exciting events, lots of great stuff in the works. We will of course host our Meet & Greet Welcome Party on Wednesday at 4pm with a light dinner, DJ & dancing and getting reacquainted with old friends and making new ones. This years theme will be "Get on the Team", Wear your favorite Team Gear & bring those dance moves!!!

Breakfast is served daily from 7am - 9:30am weekdays and 7am - 10am weekends. So rise and shine early as we will begin the conference each morning at 8:30am.

Lunch will be provided on Thursday, Friday & Saturday

Additional events will be announced as they are made available.

Lots of great speakers & new topics.

Rental car tip: Use Travelocity.com and rent the car for a week even if you won’t need it for that long, its often cheaper. Priceline is a good one to try as well especially last minute.


                               Research Information

Our fabulous research team lead by World Renowned Pediatric Urology Surgeon Dr. Linda Baker will be on-site throughout. Dr. Baker has met,cared for and treated a 185 Prune Belly Children throughout her career. Her and her team work tirelessly to identify a possible genetic link. If you would like to save time by pre-consenting to doing our part in their research efforts please contact

adaobi.solarin@nationwidechildrens.org

if you have any questions regarding research please contact

prunebellysyndrome@nationwidechildrens.org

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